Scientific and practical conference
Childhood rare diseases
June 10
15:00
In the program:
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Orphan diseases. What do we know about them today?
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Medical care for children with rare diseases in Ukraine: achievements, problems and prospects
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Paroxysmal nocturnal hemoglobinuria
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Gaucher disease: 3 steps for successful diagnosis
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Hunter disease hereditary agammaglobulinemia
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Autoinflammatory syndromes
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cystic fibrosis
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Mysteries of dermatology - orphan genodermatoses
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SMA
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Orphan disease in the family: options for managing reproductive risks
On January 1, 2022, the Resolution of the Cabinet of Ministers of July 14, 2021 No. 725 “On Approval of the Regulations on the System of Continuous Professional Development of Medical and Pharmaceutical Workers” came into force. According to it, one of the conditions for receiving BDP points for participation in the event is that participants must successfully pass the test within the specified time. ‚Immediately after the conference, you will receive an email with a link to the test. You must pass the test before 26.02 at 14:00.
!PAY ATTENTION !
Only those participants who pass the test after the event and score at least 60% of correct answers can receive certificates. According to the Order of the Ministry of Health No. 446, 1 point for BDP is expected to be awarded for 2 hours of online education.
Moderators:
Anna Gilfanova
Vice-President of the NGO "International Interdisciplinary Association of Medical Professionals", Assistant of the Department of Pediatric Infectious Diseases and Pediatric Immunology, PL Shupyk National Medical University of Ukraine, Candidate of Medical Sciences N.
Hedliners:
Anastasia Bondarenko
President of the NGO "International Interdisciplinary Association of Medical Professionals", Professor of the Department of Pediatric Infectious Diseases and Pediatric Immunology, PL Shupyk National Medical University of Ukraine, MD. N.
Inna Gedeon
Head of the SKMDDZBE NSCL "OKHMATDIT" of the Ministry of Health of Ukraine, child dermatologist
Yuri Stepanovsky
Associate Professor of the Department of Child Infectious Diseases and Child Immunology of the National Public Health Organization of Ukraine named after P. L. Shupyk, Ph.D. n
Dmitry Mikitenko
MD, Professor
head of the molecular genetic laboratory
Clinics of Reproductive Medicine "Nadiya", geneticist
Director of Darwin Life-Hope
Natalia Smulska
pediatric neurologist of the highest category Ph.D.
Elena Kiselyova
K. med. Ph.D., senior researcher at the Institute of Hematology and Transfusiology of the National Academy of Medical Sciences of Ukraine
Svetlana Yakimovich
Head of the Consultative Polyclinic of the Kyiv City Children's Clinical Hospital № 1
Larisa Volkova
doctor-geneticist of the Cystic Fibrosis Treatment Center of the Kyiv City Children's Clinical Hospital №1
Registration:
Choose the form of participation and follow the appropriate link.
Registration for live streaming only - Free
Registration of full participation - 88 UAH
Includes live streaming with access to the conference recording and the ability to receive a certificate.
Registration of full participation for members of NGO "MMAMP" - 44 UAH
Includes live streaming with access to the conference recording and the ability to receive a certificate.
REGISTRATION IS COMPLETED
ATTENTION! A registration confirmation letter will be sent to the e-mail box specified during registration within 3 business days. If you haven't received an email, please check your SPAM or PROMOTIONS folders. If there is no letter, you can contact the technical organizer for help: (093) 012-60-30.
If you do not remember whether you made a payment - please fill out the form below and we will definitely contact you
Scientific organizer
Technical organizer
